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Patient Recruitment

Clinical and Genetic Studies in Familial Non-Medullary Thyroid Cancer

Research Study for Familial Non-Medullary Thyroid Cancer

doctor and patient

Thyroid cancer accounts for the vast majority of all types of cancer and little is known about the possible genes that may cause the cancer. An estimated 5% of all thyroid cancers are hereditary. If three or more first-degree relatives are affected, there is a greater than 94% chance that these cases are familial non-medullary thyroid cancer (FNMTC). Researchers at the National Institutes of Health (NIH) are conducting a research study to develop the best ways to evaluate, determine best screening strategy, and identify genes that may indicate vulnerability to FNMTC.

Who can participate in this research study?

  • Individuals with 2 first-degree relatives (parents, siblings, children) who have or have had thyroid cancer (you can participate if you are affected by thyroid cancer or you are an unaffected family member)
  • Participants must be at least 7 years old (parent or legal guardian must provide consent for participants younger than 18 years)

About the study:

  • Participants will be evaluated with physical examination and imaging that may include neck ultrasound and iodine scans
  • Blood samples will be collected for genetic analysis
  • Treatments and research procedures are provided at no cost and travel compensation is provided

Location: The NIH Clinical Center, America's Research Hospital is located in Bethesda, Maryland, on the Metro red line (Medical Center stop).

For more information, contact:
NIH Clinical Center Office of Patient Recruitment
1-800-411-1222 (refer to study # 10-DK-0102)
TTY for the deaf or hard of hearing: 1-866-411-1010
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Or go online:

Department of Health and Human Services
National Institutes of Health Clinical Center (CC)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

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This page last updated on 10/22/2021

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