Research Study for Familial Non-Medullary Thyroid Cancer
Thyroid cancer accounts for the vast majority of all types of cancer and little is known about the possible genes that may cause the cancer. An estimated 5% of all thyroid cancers are hereditary. If three or more first-degree relatives are affected, there is a greater than 94% chance that these cases are familial non-medullary thyroid cancer (FNMTC). Researchers at the National Institutes of Health (NIH) are conducting a research study to develop the best ways to evaluate, determine best screening strategy, and identify genes that may indicate vulnerability to FNMTC.
Who can participate in this research study?
- Individuals with 2 first-degree relatives (parents, siblings, children) who have or have had thyroid cancer (you can participate if you are affected by thyroid cancer or you are an unaffected family member)
- Participants must be at least 7 years old (parent or legal guardian must provide consent for participants younger than 18 years)
About the study:
- Participants will be evaluated with physical examination and imaging that may include neck ultrasound and iodine scans
- Blood samples will be collected for genetic analysis
- Treatments and research procedures are provided at no cost and travel compensation is provided
Location: The NIH Clinical Center, America's Research Hospital is located in Bethesda, Maryland, on the Metro red line (Medical Center stop).
For more information, contact:
NIH Clinical Center Office of Patient Recruitment
1-800-411-1222 (refer to study # 10-DK-0102)
TTY for the deaf or hard of hearing: 1-866-411-1010
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Or go online:
Department of Health and Human Services
National Institutes of Health Clinical Center (CC)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)