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for assistance. For reliable, current information on this and other health topics, we recommend consulting the NIH Clinical Center at http://www.cc.nih.gov/
|The CC Pain
and Palliative Care Consult Service, which opened in August, has already
seen its 100th patient, Eugene Leverson (sitting, shown with his wife).
The staff includes (standing, left to right) Dr. Adeline Ge, recreation
therapy; Dr. Ann Berger, chief CC pain and palliative care; Dr. Jay Shah,
rehabilitation medicine; Donna Pereira, pain and palliative care; Landis
Vance, spiritual ministry; Karen Baker, pain and palliative care; and Dr
Ann O'Mara, NCI.
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CC Pain and Palliative Care Consult Service debuts
The Clinical Centers
new Pain and Palliative Care Consult Service opened in August and already boasts
more than 100 patients. The service uses a multidisciplinary approach to manage
patients pain, and the associated symptoms.
team helps to address the quality of life, pain, and symptom management issues
outside of a patients protocol," said Dr. Ann Berger, chief of the
CC Pain and Palliative Care Consult Service. "This approach helps to treat
the whole person and makes them feel better."
Patients are referred
to the service by their physicians, and after an initial assessment, team members
from various CC departments collaborate on the best approach. "We begin
by looking at pain and how it affects a patients emotional state, and
other symptoms," said Dr. Berger. "That way when we bring our team
together we can work to pinpoint critical areas of care."
Dr. Berger, a former
oncology clinical nurse specialist who received medical training at the Medical
College of Ohio, initiated palliative care services at both Yale University,
and Cooper Hospital/University of Medicine and Dentistry in New Jersey, before
joining the CC. The core staff of the service includes Dr. Berger and nurse
practitioners Donna Pereira and Karen Baker. The multidisciplinary team includes
representatives from rehabilitation medicine, pharmacy, nutrition, anesthesia,
spiritual ministry, social work, bioethics, and the CC patient representative.
According to Dr. Berger,
educating health professionals in the field of pain and palliative care has
increasingly received more emphasis in recent years. The American Medical Association
has initiated a program to educate physicians on how to provide pain and palliative
care, and questions can now be found on the internal medicine board exams. "The
JCAHO made pain a fifth vital sign for its accreditation process," said
Dr. Berger. "This shows that pain and palliative care is a growing field
in the country." But education, says Dr. Berger, is a critical component.
The staff has already initiated training for the multidisciplinary team and
looks towards providing specialized training for the medical and nursing staff
on each patient-care unit.
"It is critical
for staff to understand and identify the possible components of ones pain
experience so that appropriate treatments can be implemented," said Dr.
Jay P. Shah, a physiatrist in the Rehabilitation Medicine Department and a collaborator
in the service. "We are integrating nonpharmacologic treatments, such as
those we use in physical medicine and rehabilitation, with pharmacologic management,"
said Dr. Shah. "Its a pyramid strategy: first we try to manage pain
with physical and psychosocial modalities, and then introduce drugs as needed.
Many patients have benefited tremendously."
Timing is everything
when it comes to these issues, say the program planners. "We are here for
patients from day one of their illness, not only for end-of-life issues,"
said Dr. Berger. Patients who are experiencing anything from fear and anxiety,
to nausea and vomiting are encouraged to participate in the service. "Its
a patient's quality of life that makes all the difference. We not only have
to cure the illness, we have to take care of the person," said Dr. Berger.
"More and more patients are saying that they want both. That is our purpose,
to give them both."
Outpatient clinics are
held Mondays and Thursdays in OP3. Inpatients are seen all week. For more information,
call 4-9767. (by LaTonya Kittles)
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clinician lecture to be held Dec. 13
"The Patients Who Taught
Me and Led to My Discoveries in Congenital Adrenal Hyperplasia" is the
title of the Third Astute Clinician Lecture, which will be held on Wednesday,
Dec. 13, at 3 p.m. in Masur Auditorium. The speaker is Dr. Maria I. New (left),
professor and chairman of the Department of Pediatrics, and chief of the Division
of Pediatric Endocrinology at New York-Presbyterian Hospital-Weill Medical College,
Congenital adrenal hyperplasia
(CAH) is a family of inherited steroid production disorders. A mild form occurs
in one in 100 live births and results in excess male hormone production. The
severe form, which occurs in one in 14,000 live births, causes girls to be born
with ambiguous genitalia, and can result in severe salt and hormone imbalances
in boys and girls. Dr.
New has pioneered major advances in the diagnosis and treatment of CAH, including
the implementation of CAH newborn screening programs worldwide. She and her
associates determined that the conditions result from the lack of essential
enzymes of the adrenal gland. Through DNA analysis, they discovered specific
mutations in the genes producing these enzymes and developed a DNA test to diagnose
the most common forms of the disease prenatally. They then found that giving
the hormone dexamethasone to a pregnant mother at risk can prevent ambiguous
genitalia and a newborn salt-wasting crisis.
The adrenal gland is
located near the kidneys and controls metabolism and sex hormone production.
Dr. New has also discovered
new forms of high blood pressure and explained their genetic basis.
Dr. New obtained a BA
from Cornell and an MD from the University of Pennsylvania School of Medicine.
She completed an internship in Medicine at Bellevue Hospital and a residency
in pediatrics at the New York Hospital. She fulfilled two NIH fellowships and
was Research Pediatrician to the diabetic study group of the comprehensive care
teaching program at Cornell Medical Center.
She has received the
Robert H. Williams Distinguished Leadership Award in Endocrinology and the Rhone-Poulenc
Rorer Clinical Investigator Lecture Award. Dr. New was elected to the National
Academy of Sciences in 1996 and was president of the Endocrine Society in 1992.
She has authored more than 500 articles in scientific publications.
The Astute Clinician
Lecture was established through a gift from Haruko and Robert W. Miller, MD.
It honors a U.S. scientist who has observed an unusual clinical occurrence,
and by investigating it, has opened an important new avenue of research.
The Astute Clinician
Lecture is an NIH Directors Wednesday Afternoon Lecture Series event.
It is hosted by the CC. For information and accommodations, call Hilda Madine
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opens in the CC
Nine months after concluding
his 6-year tenure as NIH director, Dr. Harold Varmus returned to campus Sept.
18 for a warm homecoming in which the new Cybercafé for graduate students
in Bldg. 10 was officially opened and dedicated in his honor.
"Im very pleased
to see this project completed, and very grateful to have this honor bestowed
on me, especially while Im still alive," said Varmus. "I'm also
grateful for the speed with which it has happened."
Dressed somewhat uncharacteristically
in a suit and tie a signal that this was indeed a special occasion
Varmus, who is now president of Memorial Sloan-Kettering Cancer Center, said
he was pleased on three counts to open the café: first, he said he had
been obsessed, in discussions of campus master planning, with creating focal
points on campus "places where significant interactions occur."
When he was an undergraduate at Amherst, he recounted, Valentines Grill
served that purpose, offering up a unique ambiance along with burgers and English
Medical school, sadly,
lacked any special locus, he noted, but the University of California at San
Francisco, where he spent most of his research career prior to coming to NIH,
boasted the Courtyard Café, a "patch of green that had a bakery
and coffee." NIH, he said, "is a fairly rambling place, but the Clinical
Center is still its heart," so the new café has the advantage of
location in its bid to acquire charisma.
The second pleasing factor,
Varmus said, is that the café "is focused around graduate students
primarily, but also trainees of all kinds including postdocs, and high school
students. I hope that the faculty will gather to meet here, too."
Finally, he emphasized
the "cyber" nature of the place, with its promise via computers
offering Internet connection of "free access to research literature.
The message thats delivered to students is that the world could be at
their fingertips." He hoped that authors using the space would contribute
only to journals offering free access to their contents. He also acknowledged
the importance of coffee: "Good coffee is essential to good science."
"This is a great
idea Im very happy that (NIH) has finally decided to acknowledge
graduate students and foster more of a sense of community among them,"
said Aviva Jacobs, a grad student with NIDDK, now in her fifth year of training.
She predicted that veterans like herself will probably use the place less than
newcomers, for whom it will represent a welcome chance to interact.
students hang out in their labs," said Rachel Politove, an NIDDK graduate
student who first came as a summer trainee in 1993, then began graduate school
in fall 1996. "Theyre very isolated the lab is their only
interaction. The café will facilitate future graduate student activity."
Deanna Buck, a graduate
student at NINDS, lauded the Cybercafé opening as a sign that "graduate
students will know that theres a place for them to go. So many people
at NIH are unaware that we are here. This will give us a place to meet and share
an adjunct of the popular coffee bar in the Bldg. 10 lobby, is a short flight
downstairs from the bar, and occupies what used to be the Visitor Information
Centers Nobel Terrace, which had featured brief biographies of NIH grantees
who went on to become laureates. The café is furnished with comfy chairs
and sofas arranged around small tables, and has a sequestered nook for more
private gatherings. Anyone not just grad students can tote a steaming
cuppa into the café, but grad students have first dibs on reserving the
space for meetings.
"Harold Varmus has
done an enormous amount for graduate education at NIH not a day went
by that we didnt discuss some aspect of graduate education, and the need
to do more for students here," said NIH Deputy Director for Intramural
Research Dr. Michael Gottesman, who emceed the ceremony.
Also on the program were
Charles Sanders, president of the board of the Foundation for the NIH, who came
to honor Varmus contributions in support of the foundation, and Dr. Paul
Montrone, FNIH treasurer, whose company, Fisher Scientific International, Inc.,
helped pay for furnishings within the café. The FNIH board voted unanimously
last March to dedicate the facility to Varmus; Sanders unveiled a dedicatory
plaque, stating, "We are very grateful for your services."
While a proposed degree-granting
graduate school here was eventually rejected, NIH has established a Graduate
Program Partnerships Training Award for people seeking Ph.D. and masters
degrees, and this fall launched the NIH Academy, a small cadre of postbaccalaureate
research trainees who are motivated to focus on health disparities in the U.S.
There are currently almost 200 graduate students on campus, a number that will
slowly grow in coming years.
For more information
on the partnerships program or graduate education, call 4-9605. (by Rich McManus,
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addresses drug-nutrient interactions
Drugs and food can be uneasy
partners when taken together. Foods may change the effect of a drug, or interact
with the drug to cause serious, sometimes even life-threatening side effects.
So Clinical Center health
professionals are taking special care to make sure their patients know about
these serious drug-nutrient interactions.
In 1997, CC dietitians,
nurses, pharmacists, and physicians formed the CC Drug-Nutrient Interaction
Task Force. As part of their hospital-wide effort, members developed easy-to-read,
web-based information sheets to educate patients who receive drugs on potentially
serious drug-nutrient interactions. The patients dietitian, nurse, or
pharmacist evaluates and educates the patient. All disciplines use the same
factsheets that enable the patient to understand and prevent drug-nutrient interactions.
these factsheets through the web makes it easy for the staff involved to deliver
patient education using standardized, state-of-the-art information," said
Denise Ford, chief of the Nutrition Departments clinical nutrition service
and task force chair. "The web site is well used; approximately 120 patients
receive education using these materials on a monthly basis."
The drug-nutrient interaction
factsheets are newly formatted and available on a redesigned website. For more
information about the Drug-Nutrient Interaction Task Force, contact Ford at
On the web:
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personnel specialist dies
A long-time Clinical Center
employee, Michael Pometto, Jr., passed away on Oct. 5 after a long illness.
During his tenure in
the Office of Human Resources Management (OHRM), Pometto was promoted to leader,
then supervisor, and most recently, headed the Delegated Examining Unit (DEU)
as a personnel staffing specialist. In this position, he recruited nurses and
other professionals for CC departments.
"Mike was a diligent
professional who will be greatly missed," said Sue Fishbein, associate
personnel officer in OHRM. "He deferred many vacations and devoted much
personal time to work accomplishments. Even when his health was failing, he
worried about deadlines and managed to arrive at work, concerned about applicants
and management commitments," she said.
Throughout his career,
Pometto received numerous awards and bonuses for his excellent performance.
He was a recipient of the NIH Directors Award, and also earned the CC
OHRM much praise in the community for the meticulous manner in which he managed
the DEU, which was audited and cited by the U.S. Office of Personnel Management
as a model of excellence at NIH.
to motivate his staff and his relentless sense of humor were well known,"
said Fishbein. "Friends and clients spoke often about the way he not only
worked tirelessly to solve their personnel problems, but also how he could make
even the most serious person convulse in laughter in the midst of problem-solving."
Pometto was born and
raised in Wheaton, MD, and graduated from Wheaton High School. He began his
Federal career at NIH as a clinic clerk in the Nursing Department in 1979. He
moved to the NIH Personnel Systems and Actions Branch, and in 1987, he returned
to the Clinical Center as a personnel assistant in OHRM.
In OHRM he helped manage
the Clinical Center health benefits open season and the Stay-in-School Program.
He helped revise the OHRM orientation manual, developed a disability retirement
manual for the personnel assistants, contributed to the development of the employee
benefits statements, and assisted with the assimilation of the Department of
Anesthesia and Surgical Services from contract to civil service status.
He is survived by his
parents, Frances and Michael Sr.; brother, Gene of Rockville; and sisters, Darlene
of Columbia, and Michele Gilfillan of Ellicott City.
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the reception for the new clinic were (left to right) KaLea Kunkle, speaker;
Renee Thomas, AJAO chair; Dr. Raphaela Goldbach-Mansky, NIAMS; Dr. Peter
Lipsky, NIAMS; Dr. Robert Lipnick, clinic co-director; Dr. Janet Austin,
NIAMS; Janet Jones, NIAMS; Ann Kunkel, juvenile arthritis advocate; and
Dr. Barbara Mittleman, NIAMS.
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Pediatric rheumatology clinic
opens in the CC
NIH officially opened its
first pediatric rheumatology clinic during a reception held on September 21.
NIAMS, which sponsored the reception, organized the specialty clinic at the
The clinic offers diagnosis,
evaluation, and treatment for children with arthritis and other chronic rheumatic
diseases. It also serves as a specialty care facility for children through age
17 who are suspected of having or have a confirmed diagnosis of a rheumatic
"This project represents
a coming together of the community and the Clinical Center, and we thank everyone
who was involved," said Dr. Peter Lipsky, NIAMS scientific director. "The
clinic will help scientists gather research data we so badly need, especially
since rheumatic diseases in children varyconsiderably from those in adults."
Dr. Lipsky also spoke
on behalf of Dr. Stephen I. Katz, NIAMS director, saying, "Marking the
opening of the NIH Pediatric Rheumatology Clinic means making a strong commitment
to research for children with rheumatic diseases, which are costly, chronic,
and, by nature, devastating. The research information that we gather will ultimately
translate into meaningful information and data."
The youngest speaker
at the reception, KaLea Kunkel, 16, from Oregon, Mo., has juvenile scleroderma.
She, like her three siblings, including one who is adopted, all have a rheumatic
disease. "I am here representing the more than 300,000 kids with a rheumatic
disease, which may be invisible to the outsider. But the truth is that these
irreversible diseases affect every aspect of a childs life."
Other speakers included
KaLeas mother, Ann Kunkel, who also has a rheumatic disease, and is an
advocate for the American Juvenile Arthritis Organization (AJAO). Another speaker,
Renee Thomas, chair of AJAO, presented an award to Lipsky and NIAMS for ongoing
work in juvenile rheumatic diseases. In speaking about the reception and clinic,
Thomas said, "This is a wonderful celebration. Children walking through
these doors will be very fortunate. Working together, we can make the dream
come true to eventually cure our children who have arthritis."
During the ceremony,
CC Director Dr. John Gallin, pledged to assist with the needs of the clinic.
"As the clinic project evolves and needs become clear, ask us to help,"
said Dr. Gallin. "We are fully committed to this project."
The clinic will expose
additional doctors to the subspecialty of pediatric rheumatology, an area of
medicine that is greatly underserved. According to a 1999 report from the American
Board of Medical Specialties, there are only 162 pediatric rheumatologists in
the United States, and most are clustered around large cities.
Staffing the clinic are
a host of medical professionals from NIH and the private sector, including pediatric
rheumatologists, pediatricians, nurse practitioners, research nurses and fellows.
in children can compromise many developmental and educational tasks," said
Dr. Barbara Mittleman, NIAMS director of scientific interchange. "Early
and effective treatment can restore or improve the chances of kids with rheumatic
diseases enjoying childhood."
"This is a dream
come true," said Dr. Robert Lipnick, a pediatric rheumatologist in private
practice in Bethesda, who helps staff the clinic along with Dr. Karyl Barron,
an NIAID pediatric rheumatologist; and Dr. Raphaela Goldbach-Mansky, an NIAMS
pediatrician. "I am extremely excited about this clinic," Dr. Lipnick
said. "It will provide a tremendous opportunity for training young physicians
to diagnose and treat children with rheumatic diseases and for conducting innovative
and unique research studies. It also offers children all over the country the
chance to participate."
Pediatric rheumatic diseases
include juvenile rheumatoid arthritis, lupus, scleroderma, dermatomyositis,
familial fever syndromes, and other chronic diseases that affect the joints,
muscles, bones, and skin. (by Janet Howard, NIAMS)
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honored at Lasker reception
CC hosted a reception last month to honor Dr. Harvey Alter, chief of the Infectious
Disease Section and associate director for research in the Department of Transfusion
Medicine. The reception celebrated Dr. Alters receipt of the 2000 Albert
Lasker Award for Clinical Medical Research. The Albert and Mary Lasker Foundation
granted Dr. Alter the award to recognize his work to eliminate the presence
of hepatitis C in the U.S. blood supply. The event included remarks from CC
Director Dr. John Gallin; Dr. Harvey Klein, chief, Department of Transfusion
Medicine; Dr. Michael Gottesman, deputy director for intramural research, NIH;
and Dr. Ruth Kirschstein, principal deputy director, NIH. Dr. Alter was presented
with a portrait by Al Laoang (right), Medical Arts and Photography Branch.
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QWL fair hailed a success
The CC QWL Council would
like to thank all of the staff involved in this year's NIH QWL fair, held last
month. The CC Council provided a host of resources to the community, including
handouts, health screenings, and information on the blood donor program at the
CC. A "traveling suggestion box" was also available. Staff are reminded
to drop any quality-of-work-life suggestions in the box near the B1 and 2nd
floor cafeteria exits.
Transhare program enhanced
The Transhare program has
had some positive changes recently. Anyone who qualifies will receive the benefit,
and the upper level of the benefit amount for Metrochek vouchers has gone up
For more information
call 6-6851 or e-mail: email@example.com
NINDS researchers seek adults
with hypertension for a blood draw. Participants must have an NIH hospital identification
number and have had a physical examination at the CC within the past year. Participants
will be needed for approximately one hour, and will receive compensation. Appointments
will be scheduled at 9:15 a.m. and 10:30 a.m. only. For more information, call
Tereza at 6-1115.
Children needed for ADHD
The Pediatrics and Developmental
Neuropsychiatry Branch of NIMH seeks children 6 to 13 years old, with and without
an ADHD diagnosis, to participate in a movement study. Volunteers should have
no other history of medical, psychiatric, or neurological disorders (including
seizures and hearing problems), and should not be currently taking any prescribed
medications. Participation requires a screening interview and neurological examinations.
The study will take three to four hours, and participants will be compensated.
For more information, call Chris Barker at 6-5323.
Winter blues study
During the winter, are you
like a bear that wants to hibernate all the time? If you notice that you feel
fatigued and down and that your sleeping and eating habits change in the winter,
you may be eligible to participate in a research study on seasonal affective
disorder. Diagnostic assessment and treatment consisting of light therapy, psychotherapy,
or their combination will be offered. Interested volunteers, 18 or older, are
invited to call the Uniformed Services University for more information at (301)
Stress hormones &
NIMH researchers seek people
with current or past depression to participate in an evaluation study. Participants
should be between 18 and 65 years old and otherwise medically healthy. They
cannot have smoked within the last year and need to be able to stay at least
one night at the CC. Eligible participants will receive a physical evaluation
and metabolic studies, and will participate in studies for possible heart disease
and osteoporosis in depression. Participants will be compensated. For more information,
Awards ceremony announced
The Clinical Center Directors
Annual Address and Awards Ceremony will be held on Nov. 13 at 2 p.m. in Masur
The CC Department of Laboratory
Medicine (formerly Clinical Pathology) announces its 28th annual holiday fundraiser
to benefit the Patient Emergency Fund and the Friends of the Clinical Center.
Tickets will be on sale Oct. 30-Dec. 7 outside the 2nd floor cafeteria, and
the event will be held on Dec. 8,
9 a.m.-2 p.m., in room 2C310.
For more information, call Norma Ruschell at 6-4473, or Sheila Barrett at 6-5668.
Clinical research training
Applications for the 2001-2002
NIH-Duke Training Program in Clinical Research are now available in Room B1L403.
Designed primarily for clinical fellows and other health professionals training
for careers in clinical research, the program offers formal courses in research
design, statistical analysis, health economics, research ethics and research
management. Courses for this program are offered at the CC by means of videoconferencing
from Duke or onsite by adjunct faculty. Students completing the required coursework
are awarded a Master of Health Sciences in Clinical Research from Duke University
School of Medicine. Prospective participants should consult with their institute
or center regarding the official training nomination procedure. Applications
must be received by March 1, 2001.
PI training announced
The required course for clinical
principal investigators, Clinical Research Training, will be repeated on Dec.
12 from noon-4 p.m. in Lipsett Amphitheater. Topics include ethical issues in
human subjects research, roles and responsibilities of the investigator and
institution, regulatory issues, and clinical investigators and the mass media.
All principal investigators
with a protocol approved through the Clinical Center are required to take the
course and successfully complete an exam by March 1, 2001. Registration will
be held from Nov. 1-30.
CRC to be discussed
The designers of the new
Clinical Research Center, the Zimmer Gunsul Frasca Partnership, will discuss
several of their recent design projects, including the CRC, on Nov. 13 from
6:30 to 8:00 p.m. at the National Building Museum in Washington, D.C. The cost
is $10 for Museum members, and $14 for nonmembers. To register, call (202) 272-2448,
or register online.
On the web:
Celebrate escort services
Join members of the escort
team in celebrating patient escort services Nov. 6-9 from 9 a.m. to 2 p.m. outside
the hospitality services office, 1C174. They will sponsor their sixth annual
raffle to benefit the Patient Emergency Fund, and the winner will receive exclusive
transport services for the patient-care area of their choice. Tickets can be
purchased from any member of the patient escort team, and tickets will also
be sold outside the second floor cafeteria during lunch hours.
The Performing Arts Ensemble
will present a musical adaptation of "Scrooge" on Saturday, Dec. 2
at 7 p.m. in Masur Auditorium. Local actors and dancers will star in the extravaganza,
and there will be a special appearance by Dale Solly from Channel 7 News. Proceeds
from the event will support NIH patients and their families through the Friends
of the Clinical Center. Admission is $8 for adults and $4 for children 12 and
under. For tickets, call 4-5596.
No more receipts
The annual receipt drives
to benefit the NIH School has new rulesno more receipts needed. To help
the NIH School earn free educational equipment, shoppers at Safeway and Giant
Foods need only register for a club card and give the school code: Giant #2983,
and Safeway #0623. Then registered shoppers will automatically earn credit for
the school every time they use their club cards. The NIH School can even earn
double credit when customers purchase selected products which are clearly designated
at the stores. Both the Safeway Club Card for Education Program, and the Giant
A+ Bonus Bucks Program run until the end of March 2001. For more information
call the NIH School at 6-2077, or e-mail: firstname.lastname@example.org.
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Center News, 6100 Executive Blvd., Suite 3C01, MSC 7511, National Institutes
of Health, Bethesda, MD 20892-7511. Tel: 301-496-2563. Fax: 301-402-2984.
Published monthly for CC employees by the Office of Clinical Center Communications,
Colleen Henrichsen, chief. News, article ideas, calendar events, letters,
and photographs are welcome. Deadline for submissions is the second Monday
of each month.
The information on this page is archived and provided for reference purposes only.