The NIH Clinical Center Recognizes Family Caregivers
 
 
Caregiver Resources

Below are information and links to online resources for caregivers. The National Institutes of Health Clinical Center does not endorse resources produced by external organizations. This material is provided for information only.
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NIH Clinical Center Caregiver Resources | Federal Caregiver Resources | Online Caregiver Resources

NIH Clinical Center Caregiver Resources

Resource Description

*Caregiving at the NIH Clinical Center YouTube Icon
[disclaimer]

A brief video overview of NIH Clinical Center caregiver resources.

The Children's Inn

The Children's Inn monthly calendar of activities.

Edmond J. Safra Family Lodge

The Edmond J. Safra Lodge at the NIH.

*The National Cancer Institute

Offers support for caregivers, resources for children and teens with family members diagnosed with cancer and resources to prepare for end-of-life.

*National Institute of Mental Health (NIMH)

Publications and resources on a variety of mental health topics.

NIH Clinical Center Recreation Therapy

Services and weekly schedule of activities available to NIH Clinical Center patients and their caregivers.

*NIH Medline Plus

Provides educational resources (English & Spanish), links to research, and health information and care tips for the caregiver.

NIH Patient Library PDF Icon (136 KB)

A bibliography list of caregiver resources available in the NIH Patient library.

Nursing Department

Information about nursing at the NIH Clinical Center.

Nutrition Department

Patient room service menu, clinical nutrition services, and nutrition research services.

Office of Research Services, Division of Amenities and Transportation Services

Services include local banking, fitness, wellness, transportation and retail services and information for those in the NIH Community. Please view site for full listing of resources and more information.

*Social Work Department

Patient services, education and training, and annual conference information.

TIPS Videos

The TIPS program is an educational series of videos offered by the NIH Clinical Center.

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Federal Caregiver Resources

Resource Description

*Answer.USA.Gov 

Federal repository of caregiver resources.

The Center for Medicare & Medicaid Services YouTube Icon
[disclaimer]

YouTube Channel containing podcasts designed to help providers and caregivers think about the steps involved in medication management, especially during transitions to and from hospital, long term care, and home care settings.

Disability.gov

Federal government website that provides an interactive, community-driven information network of disability-related programs, services, laws and benefits.

*Medicare.gov

Medicare's Caregiver website

Medicare's Caregiver Guide PDF Icon (1 MB)

Resource guide provide links to services available for caregivers and care recipient.

*National Center for Complementary and Alternative Medicine

Numerous resources for understanding, finding, and applying complementary and alternative medicine.

National Institute on Aging

Information on NIA research and aging health.

National Library of Medicine

Several article databases, online exhibitions, and research information.

National Resource Directory

Learn about caring for wounded warriors and find support groups and hospice information.

*Social Security Administration

Services for retirement, disability, Medicare, and social security.

Veterans Affairs – Caregiver Support

Support services, connections, and resources for caregivers of veterans.

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Online Caregiver Resources

Resource Description

*AARP
[disclaimer]

Tools, work sheets and tips on how to plan, prepare and succeed as a caregiver.

Aging Care.com
[disclaimer]

An online community that connects people caring for elderly parents to other caregivers, personalized information and local resources.

*Alzheimer's Association
[disclaimer]

Information and links to resources in local communities that offer personal support.

American Brain Tumor Association
[disclaimer]

Support groups, personal health tips, and caregiver tools for caregivers of persons with brain tumors.

*American Cancer Society
[disclaimer]

Offers caregiver support and coping information.

American Institute for Cancer Research
[disclaimer]

General cancer information, how to reduce your cancer risk, and current cancer research.

The American Psychological Association's Family Caregiver Briefcase
[disclaimer]

Professional tools and family caregiver information on caregiver research, education, advocacy, and resources.

Aplastic Anemia & MDS International Foundation, Inc.
[disclaimer]

Offer peer and professional support contact and education and caregiving resources.

ARCH National Respite Network
[disclaimer]

Assist families to locate respite resources in their local communities.

The Balanced Mind Foundation
[disclaimer]

Resources for caregivers and family of children with mood disorders.

*Cancercare.org
[disclaimer]

Free professional support to those affected by cancer, offers education, workshops, counseling services and financial assistance.

Cancer Hope Network
[disclaimer]

Non-profit organization that provides free and confidential one-on-one support to cancer patients and their families.

Cancer Legal Resource Center
[disclaimer]

Provides information and education about cancer-related legal issues.

Cancer Support Community
[disclaimer]

International non-profit dedicated to providing support, education and hope to people affected by cancer.

*Caregiver Action Network
[disclaimer]

Provides education, peer support, and resources to family caregivers.

*Caregivers Project
[disclaimer]

Caregiver documentary, handbooks, and tools for family caregivers.

CareGiving.com
[disclaimer]

Online community of blogs, support groups, forums, and other resources for family caregivers.

CarePages.com
[disclaimer]

Free site to create video or website blog  to stay connect with others.

Caring.com
[disclaimer]

Caregiving resources, expert advice on caregiving, and money and legal resources.

*Caringbridge.org
[disclaimer]

Free site to stay connected with friends and family while undergoing health challenges. Instructions for creating a free website on CareBridge.org are available in the PDF document PDF Icon (21 KB).

Caring Connections
[disclaimer]

Free resources, information and support for those serving as caregivers or grieving from loss.

Caring From A Distance
[disclaimer]

Resources, guidance, and information regarding long-distance caregiving.

Casey Health Institute
[disclaimer]

Integrative health and wellness center located near the NIH Bethesda campus.

Compassion Fatigue Awareness Project©
[disclaimer]

The Compassion Fatigue Awareness Project© is dedicated to educating caregivers about authentic, sustainable self-care and aiding organizations in their goal of providing healthy, compassionate care to those whom they serve.

Family & Nursing Care
[disclaimer]

Home care and in-home therapeutic massage to enhance quality of life for clients and families PDF Icon (215 KB) .

*Family Caregiver Alliance
[disclaimer]

Information, education, links to services, research and advocacy for caregivers.

*Full Circle of Care
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Referrals to resources on housing, coping, illnesses, and financial support for caregivers.

Healthy Caregiving
[disclaimer]

Books, posters, training materials and resources to aid caregivers with practicing self care.

Health Care at Home, LLC
[disclaimer]

Home healthcare client services and offerings.

Hope Connections for Cancer Support
[disclaimer]

Education and support for those with cancer and their caregivers.

Joe's House
[disclaimer]

Online nation-wide lodging resource for cancer patients and their families who must travel away from home for medical treatment.

*The Leukemia & Lymphoma Society (LLS)
[disclaimer]

Offer educational and resources specifically for cancer caregivers.

LIVESTRONG
[disclaimer]

Programs, partnerships, and resources for community support, professional services, and personal health.

Lotsa Helping Hands
[disclaimer]

Free website to create online community for organizing friends, families and community volunteers to help with caregiving.

My Cancer Circle
[disclaimer]

A free, private support community for caregivers of people facing cancer that contains an online tool for caregivers to help organize the community of people who want to help them.

National Alliance for Caregiving
[disclaimer]

Conduct research, develop national programs and increase the awareness of caregiving in the US. Offers educational resources, webcasts, and conference materials on caregiving.

National Alliance on Mental Illness
[disclaimer]

Education, training, and peer support center for families and caregivers of individuals with mental illnesses.

National Association for Hospital Hospitality Houses
[disclaimer]

Resource to assist patients and their families find homes during treatment.

*National Brain Tumor Society
[disclaimer]

Workshops, connecting with peers and tips for caregivers for those with brain tumors.

National Caregiving Foundation
[disclaimer]

Links to caregiving resources, free caregiver support kit.

National Coalition for Cancer Survivorship
[disclaimer]

Living with cancer, cancer policies, survival tools, and other resources.

*National Marrow Donor Program
[disclaimer]

Links to free transplant caregiving resources, videos and presentations.

nBMTLink
[disclaimer]

Free transplant caregiving resources and guides.

Pheochromocytoma.org
[disclaimer]

Support organization for those affected by pheochromocytoma with links to disease specific research, news, and updates.

Pheo Para Trooper
[disclaimer]

Support, resources, and events for patients and families affected pheochromocytoma.

Rosalynn Carter Institute for Caregiving
[disclaimer]

Links to service, research, advocacy and academic programs on caregiving.

Smith Center for Health and the Arts
[disclaimer]

A non-profit health, education, and arts organization offering integrative healing programs and resources for those affected by cancer.

Strength for Caring
[disclaimer]

Information on caring for the caregiver, practical advice for caring for individuals with specific types of illness, connect with other caregivers and resource center.

Well Spouse Association
[disclaimer]

Membership organization for spousal caregivers that offers a national network of support groups, advocacy, mentoring and respite conferences.

Young Cancer Spouses
[disclaimer]

Provides community environments offering information, support, and experiences to young spouses of adults with cancer.

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Page last updated: May 9, 2014