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Welcome to Our Patients
   

Welcome

Photo of entrance to Clinical Center

Welcome to the NIH Clinical Center!

The Clinical Center is the research hospital at the National Institutes of Health. It is the world's largest hospital devoted solely to research. You will be among patients who like you--are participating in a clinical research study.

Our doctors, nurses, health-care professionals and support staff are committed to providing the best in medical and hospital care for you. Your participation in clinical research at NIH is an investment in health and health care.


Why you were selected
You were selected as a Clinical Center patient on the basis of the medical information provided, and you will be invited to take part in a research program. By studying and observing many people with a particular disorder, we hope to find common factors that will help us to better understand the condition.

Some patients at the Clinical Center receive new treatments, which may offer the promise of helping you or others with certain conditions. NIH doctors carefully monitor their patients' response to these new treatments. For other patients, too little is known about their condition to begin new treatment. These patients have been accepted for admission to enable us to gain vital information about their disease.

The research protocol
Whether or not you receive new treatments, you will be admitted under a care and observation plan, called a protocol, developed to study your condition. This plan outlines what researchers need to know about your condition and how they will get this knowledge. Before you take part in a protocol, it will be explained to you. You'll be encouraged to ask questions, and asked to give your written consent before any research or treatment takes place. The requirements of a protocol and the status of your health determine how long you will stay at the Clinical Center and whether you will be an inpatient or an outpatient.

The hospital and clinics
The National Institutes of Health (NIH)is one of five health agencies of the Public Health Service, which, in turn, is part of the U.S. Department of Health and Human Services (DHHS). The principal medical research arm of DHHS, NIH conducts basic, clinical, and applied research related to a broad spectrum of diseases and health problems. It represents the nation's commitment to biomedical research and improving the health of its people. Thousands of research projects are in progress on the campus. Over the years, NIH has supported the work of 76 Nobel Prize winners.

The Admissions Process

Photo of admissions area

Who can be admitted
If you want to be a patient at the Clinical Center, you must have a condition or disease being studied by one or more research projects being done at NIH. Except in an emergency, you cannot be admitted to the Clinical Center as a patient until you have a diagnosis and until our admissions staff receives your name from a member of the institute medical staff recommending admission.

It is best that a health care professional refer you to be a patient at the Clinical Center. Self-referrals can also be made, but these can only take place after talking to an institute staff who works on the protocol that interests you.

In emergencies, a patient who has not met these requirements may be admitted if the Clinical Center examining physician determines that moving the patient to another medical facility would cause harm. A patient admitted in an emergency will be discharged or transferred to another medical facility when, in the opinion of his/her attending NIH physician, that transfer would not adversely affect his/her condition.

For general information about admissions to the Clinical Center, call the admissions desk at 301-496-3141 or 301-496-3315/6.

For information about becoming a research volunteers and how to take part in medical research studies: contact the Office of Patient Recruitment toll-free at 1-800-411-1222 (TTY: 1-866-411-1010). Learn more...

What happens when you are admitted
Admissions handles registrations for all new inpatients and outpatients as well as previously registered patients who are scheduled for inpa­tient admission to the hospital. If you are a new patient, you will be interviewed by an admissions clerk. You will be asked to review and sign a gen­eral consent form stating that you have agreed to take part in biomedical research. You will also be asked to review and sign an information practices form. This form states that the Clinical Center will do its utmost to protect your privacy and identifies situations when the Clinical Center may share information about you (as discussed in Section 2 of this booklet under the heading "Uses of Information Outside NIH").

Except for an emancipated minor, only a parent, legal guardian, or legally authorized representa­tive may sign for a patient who is a minor (less than 18 years of age). If you have any concerns about your research program or informed con­sent, ask for assistance. There are many people available to address your concerns.

When the admissions process is completed and you have signed the required forms, you will be directed to the patient care unit or outpatient clinic. If you are being admitted as an inpatient and accompanied by relatives or friends who wish to stay near the Clinical Center, admissions personnel will help arrange housing for them.

When you enter the Clinical Center, report to admissions. Admissions handles registrations for all new inpatients and outpatients as well as previously registered patients who are scheduled for inpatient admission to the hospital. If you are a new patient, you will be interviewed by the admissions clerks. You will be asked to review and sign a general consent form stating that you have agreed to take part in biomedical research. You will also be asked to review and sign an information practices form. This form states that the Clinical Center will do its utmost to protect your privacy and identifies situations when the Clinical Center may share information about you.

Except for an emancipated minor, only a parent, legal guardian, or legally authorized representative may sign for a patient who is a minor (less than 18 years of age). If you have any concerns about your research program or informed consent, ask for assistance. There are many people available to address your concerns.

When the admissions process is completed and you have signed the required forms, you will be directed to the patient care unit or outpatient clinic. If you are being admitted as an inpatient and accompanied by relatives or friends who wish to stay near the Clinical Center, admissions personnel will help arrange housing for them.

Money and valuables. When you are admitted, valuables such as money or jewelry should be taken to the cashier's office located in the lobby at the main entrance to the hospital where they will be placed in a locked vault. You will receive a receipt. Cashier's hours are 8:30 a.m.-5 p.m. Monday through Friday. If you expect to be discharged on a weekend, evening, or holiday, withdraw your valuables in advance. You may call the cashier's office at 301-496-2654.

If you are going to be discharged before 8:30 a.m., be sure to remove your property before 5 p.m. the previous day. At other times, the admissions staff will accept valuables to keep in the safe and turn them over to the cashier for you. Be sure to safeguard your property and belongings.

Luggage. Luggage can be stored in lockers located in the Transportation/Waiting Area. Hospitality staff will be available to assist you.

Medicines. Give all your own medicines (even aspirin or vitamins) to your nurse. If NIH doctors prescribe medicine for you, it will be dispensed to your unit and administered by your nurse. Please plan to be on the patient care unit at medication time.

Medications prescribed at discharge or in your clinic, are dispensed at the Outpatient Pharmacy.

Some Guidelines

Appliances. To ensure a safe environment on the patient care units and throughout the hospital, we have a policy about electrical appliances patients may bring. Small personal appliances such as electric razors, hair dryers, or laptops are okay, but they should require standard 110-volt electricity and should not show signs of damage (frayed cords). Appliances must not need to be connected to government property. Irons, portable heaters, heating pads, hot plates, toasters, hot oil popcorn poppers, and other kitchen appliances used to heat and prepare food are not permitted. Because of concerns for the operation of medical equipment, we restrict the use of cellular phones and other transmitting devices in some patient care areas. If you have any questions about the appliances or equipment you may bring, be sure to ask your nurse.

If you own or rent a medical device that you routinely use, you may bring it to the Clinical Center. When you are admitted, our staff will tell you whether this device can be used. When possible, we will try to accommodate your special needs and you will be allowed to use the device. However, the CC reserves the right to substitute another device for yours if it is determined necessary for your protocol or for your care at the CC.

If it is ok for you to use your medical device at the hospital, the device must be in good working order. Since we may not have your device at the Clinical Center, you should also bring a supply of disposable items (e.g., special tubing or bags), instructions for use, as well as any reports on the testing and performance of the equipment.

Dress. Unless your doctor or nurse tells you otherwise, you are urged to be up and dressed during the day. If you are not confined to your bed, you should plan to wear casual street clothes and comfortable walking shoes. If you prefer to go out of your room in night clothes, please wear your bathrobe. At night, you will probably prefer to use your own night clothing, robe, and slippers. However, the Clinical Center can supply free, standard hospital nightwear. Please remember always to wear shoes or slippers.

Identification bracelet. On admission to an inpatient unit you will receive an identification bracelet to wear on your wrist. Please keep it on at all times, even while bathing or when going home on weekend pass. This bracelet will serve as identification when you go through security checks at NIH.

Identification badge. Patients may ask their health care staff about getting an NIH identification badge. This badge may be useful for security checks or for using other Clinical Center services.

Leaving the unit. Before leaving the unit or clinic, please sign a check-out sheet at the nurses' station and inform a staff member. This enables the medical and nursing staff to locate you if necessary. Check with your nurse to see if you are scheduled for any tests or medications. Try to plan returning to the unit by 9 p.m.

Leaving the Hospital with a pass. You will need permission from your doctor if you wish to go outdoors. Many patients are also permitted to leave the campus for an evening or weekend. Obtain a pass from your doctor and check with your nurse to make sure no tests are scheduled when you plan to be away. Your nurse will obtain any medicine that you will need, and he or she will notify the kitchen about your missed meals. Because units may have slightly different procedures, you may want to check with your nurse.

No-smoking policy. As the nation's leading medical research center, the NIH Clinical Center is committed to ensuring a healthy and safe environment for patients, visitors and staff. Clinical Center policy restricts smoking anywhere inside the Clinical Center (including the parking garages), within 100 feet of any entrance to the Clinical Center, within 25 feet of any exterior wall of the Clinical Center, and in all areas around the Clinical Center designated as "no-smoking areas". Please note that persons found smoking inside the Clinical Center will be subject to a fine from the NIH police.

Clinical Center Medical Executive Committee policy permits patient smoking under certain strictly controlled circumstances. Talk with your doctor or nurse if you need more information or would like information about smoking cessation. Learn more.....

Introducing Your Health Care Team at the Clinical Center

The care that you receive at the CC is provided by a multidisciplinary team of caregivers and researchers led by your attending physician. This team may also include other medical practitioners such as nurse practitioner and physician assistants as well as nurses, pharmacists, social workers, dietitians, recreational therapists, and many other health care professionals. This team works closely to assure that you receive the highest quality and personalized care and services while you are a patient at the Clinical Center.

Your attending physician and clinical fellow. While you are a Clinical Center patient, there are always two doctors who share the responsibility for your care.   

Your attending physician is responsible for conducting your study (protocol) and for the overall quality of your medical care. How often you will see your attending physician will depend on your research protocol, the complexity of the medical problem, and your individual needs. 
 
Your clinical fellow is a well-trained doctor who has chosen to come to NIH to learn more about medical research. This doctor is responsible for the immediate management of your care. This member of your health care team will evaluate you, order medications and tests, and see you often. This is the doctor who knows you best. The clinical fellow consults with your attending physician. You may, of course, ask to see your attending physician if you have more questions

Doctors may change. If you are a Clinical Center patient over a long time, you will not have the same doctors. 
Clinical fellows are assigned to patient care for fixed periods, so unless you are a short-term patient, your clinical fellow will change from time to time. You may retain the same attending physician, but on many patient care services, these responsibilities rotate among a group of senior doctors who also rotate on a fixed schedule. 
 
Any time you are transferred from one Institute or branch to another, both your clinical fellow and your attending physician will change. The NIH consists of many Institutes, most of which conduct research in a specific field of medicine. Within each Institute are several branches where studies are being done on specific conditions within the general field covered by the Institute. Many patients have problems of interest to more than one Institute or branch. Each Institute and branch has its own team of doctors. 
 
Knowing your institute and branch. It is very useful to know your Institute and branch. If you should ever need assistance when your own doctor is not available, knowing your Institute and branch will make it easier to locate the person best able to help you. 
 
Seeing NIH doctors outside your institute and branch. You may see a number of other NIH doctors who have been asked to examine you because they are specialists in medical fields other than those familiar to your attending physician or clinical fellow. 

The continuity of your care rests with a team or group of doctors. Even though members of the team or group may change, they all communicate through the same channel: your clinical fellow and attending physician. You should always be informed when changes occur. If you ever have questions, do not hesitate to contact your clinical fellow or attending physician so that you understand the situation to your satisfaction. 

Introducing the Nursing Staff

Photo of nurses consulting

You will get to know members of your nursing staff. They will provide much of your day-to-day care. They will also assist you and your family and see that your medications, tests, and treatments are carried out. You will also become familiar with the unique and special features of your unit.

For more information about Clinical Center Nurses, visit their home page at http://www.cc.nih.gov/nursing/index.html.

 

 

This page last updated on 05/16/14


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