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NIH
Sickle Cell Cord Blood Research Program
What is necessary
to do to participate?
To participate, first the mother must receive
information about the program. This usually involves a face-to-face
meeting in which all aspects of the program are explained. Once
the potential donors questions are answered, she will be
asked to read the "Informed Consent" document and sign
it. This document spells out what will be expected from the maternal
donor and each step of our research.
The process includes:
Obtaining
a medical and family history.
Permission
for us to review the mothers and the babys hospital
medical chart.
Permission
for us to collect and test the infant's cord blood and to be notified
of any abnormal results.
Giving
accurate contact information Permission for us to contact them
in the future to obtain updates on the baby's health.
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