This information is selected specifically for patients participating in clinical research protocols at the Clinical Center at the National Institutes of Health. It may not apply to individuals who are patients elsewhere. If you have questions about the information presented here, talk to a member of your health care team.These documents are pdf files. You'll need Adobe Acrobat Reader to download and print a pdf. Click here to get a free copy.

Spanish Titles

Coping

• Coping with Chronic Illness
• Talking to Children About Death

Disease

• Cytomegalovirus (CMV) Infection: A Guide for Patients and Families After Stem Cell Transplant  
• Diabetes Insipidus - What kind of diabetes is that?
• Facts about CAH (Congenital Adrenal Hyperplasia)
• Graft Versus Host Disease (GVHD): A Guide for Patients and Families After Stem Cell Transplant
• Managing Adrenal Insufficiency
• Managing Bladder Dysfunction
  • Foley Catheter Care
  • How to Wash Your Hands
  • Clean Intermittent Self-Catheterization: procedure for men
  • Clean Intermittent Self-Catheterization: procedure for women
• Managing Bowel Dysfunction
• Pheochromocytoma
• Alpha-1 antitrypsin deficiency
• Understanding Congestive Heart Failure
• Understanding Xeroderma Pigmentosum

Drugs

• Answers to Your Questions: Intravenous Interleukin-2 (IL-2) Treatment
• Answers to Your Questions: Outpatient Treatment with Interleukin-2 (IL-2)
• Conscious Sedation: Information for Adult Patients at the Clinical Center
• Drug-Nutrient Interactions
• Ribavirin Treatment 
• Sedating a Child for a Test or Procedure

Procedures-Diagnostic/Therapeutic

• Scans and diagnostic tests (e.g., echocardiogram)
  • English
  • Spanish
• Outpatient Surgery/Procedure Instructions
  (Preoperative and post-procedure guidelines in English/Spanish)

• After Your Blood Transfusion-Outpatient Instructions (available in the languages below)
  • English
  • Spanish
  • French
  • Arabic
  • Chinese
  • Vietnamese
  • Greek
• Answers to Your Questions: Respiratory isolation and admission procedures for inpatients with tuberculosis (TB)
• Answers to Your Questions: Respiratory isolation and admission procedures for outpatients with tuberculosis (TB)
• Bronchoscopy (Pulmonary Branch Protocols)
• Caring for your Percutaneous Nephrostomy Tube
• Giving a Subcutaneous Injection
• Facts about: Liver Biopsy
• Handling Hazardous Drugs Safely at Home
• Handling Sharp Objects Safely at Home
• How to Put in Your Eyedrops
• How to Care for the Jackson-Pratt Drain
• Managing Your Non-Tunneled (Percutaneous) Catheter: PICC, SICC, and JICC
• Managing Your Tunneled Catheter (Hickman, Neostar, Broviac, Leonard)
• Post-op Instructions: Taking care of yourself after your operation
• Preparing for a Needle Aspiration Biopsy
• Preparing for Outpatient Surgery
• Preparing for Third Molar Removal
• Preparing for Transfusion Therapy
• Preparing to Receive I-131: The Low-Iodine Diet
• Understanding Transsphenoidal Surgery
• Understanding Your Complete Blood Count
• What to expect on the day of your stem cell transplant
• Your Guide to Organ/Tissue Transplantation

Research

• Partners in Research
• Patient Responsibilities at the Clinical Center
• Smoking Policy
• Testing Your Blood for HIV, the Virus that Causes AIDS

Self care

• Don't let food make you sick! For those at increased risk for food-borne illness (Spanish)
• Living with Dyspnea

Support

• Hello! I'm Your Primary Nurse
• How to operate your bedside TV/Computer
• NHLBI Hematology Branch: Patient Services and Information
• NHLBI Hematology Branch: Peripheral Blood Stem Cell Transplant Patient Services and Information
• NHLBI Hematology Branch: Peripheral Blood Stem Cell Transplant Donor Services and Information
• Pediatric Services
• The NIH Children's School
• Spanish phrases for health professionals
• Welcome to 3 North East (3 NE)
• Welcome to 3 North West (3 NW)
• Welcome to the 3 SE Hematology/Oncology Day Hospital
• Working Together to Relieve Your Pain
• Your Visit to the NIH Genetics Clinic