Von Hippel Lindau Disease:
Genetic, Clinical and Imaging Features

Peter L. Choyke, M.D., Gladys M. Glenn, M.D., Ph.D., McClellan M. Walther, M.D., Nicholas J. Patronas, M.D., W. Marston Linehan, M.D., Berton Zbar, M.D.

Radiology (March) 146:629-642,1995


Appendix 1

DNA Testing Laboratories for VHL


DNA Diagnostics Laboratory at the Center for Medical Genetics
Johns Hopkins University
Baltimore, MD 21205
Telephone 410-955-0483

Genetic Diagnostic Referral Center
University of Pennsylvania School of Medicine
Department of Genetics
Philadelphia, PA 19104-6145
Telephone 215-573-9161
Fax 215-573-7760

Support Groups


VHL Family Alliance
171 Clinton Road
Brookline, MA 02146
Telephone 617-232-5946
Toll Free Telephone 800-767-4VHL
Electronic Mail vhl@pipeline.com
WWW http://neurosurgery.mgh.harvard.edu/vhl-fa

Von Hippel Lindau Syndrome Foundation
35 Beaverson Boulevard
Building 2 Suite B
Brick, NJ 08723
Telephone 908-262-9708
Voice Mail 908 244-7635

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