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Developing the CC Operating Plan - Patient Input
Patient Advisory Group
In 1998, as planning for the new Clinical Research Center proceeded, a group of former and current patients was assembled, through nominations by institute directors, to provide the patient's perspective on design of the new building. During these sessions, several patients articulated the need for a forum to establish regular communication with Clinical Center leadership. Those discussions led to the creation of the Patient Advisory Group which meets quarterly to advise and help guide the Clinical Center Director on improvements from the patients’ perspective.
Patient Perception Survey
The Clinical Center has partnered with The Picker Institute, Boston, Massachusetts, to design and administer surveys to patients and other customers of the Clinical Center. The inpatient survey is a combination of standard, field-tested questions developed by the Picker Institute and a series of custom questions designed by Clinical Center staff, Institute colleagues, and patients. An inpatient survey, administered beginning in Spring 1999, addresses the following dimensions of care:
• Access to care
• Respect for patients’ values, preferences and expressed needs
• Coordination of care and integration of services
• Communications between patients and providers
• Physical care, comfort and alleviation of pain
• Emotional support
• Involvement of family and friends
• Transition and continuity
In FY 2001, the results of an outpatient survey will be analyzed along the same dimensions with subsequent plans for administration of more focused surveys, such as pediatrics.
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